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Structurally unsound

HOUSTON, TEXAS (August03, 2017)

Sarrah Hannon once led an active life of triathlons, marathons and rock climbing. Now she refrains from lifting a gallon of milk. Hannon, 30, lives with Ehlers-Danlos Syndrome (EDS), a group of genetic connective tissue disorders. The most abundant protein in her body, collagen, is failing her. Hannon underwent her 10th surgery in February. Fraser Henderson, M.D., a Maryland-based neurosurgeon, has performed four spinal surgeries on her. Henderson has encouraged Hannon to fuse her skull to her cervical spine, but she fears that could end her ability to work. After neck surgery, Hannon began working with Monica Shroff, a physical therapist at Memorial Hermann Sports Medicine & Rehabilitation who treated her first patient with EDS a few years ago.