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HOUSTON, TEXAS (August03,
Sarrah Hannon once led an active life of triathlons,
marathons and rock climbing. Now she refrains from lifting a gallon of
milk. Hannon, 30, lives with Ehlers-Danlos Syndrome (EDS), a group of genetic connective
tissue disorders. The most abundant protein in her body, collagen, is failing
her. Hannon underwent her 10th surgery in February. Fraser Henderson, M.D., a
Maryland-based neurosurgeon, has performed four spinal surgeries on her. Henderson
has encouraged Hannon to fuse her skull to her cervical spine, but she fears
that could end her ability to work. After neck surgery, Hannon began
working with Monica Shroff, a physical therapist at Memorial Hermann Sports
Medicine & Rehabilitation who treated her first patient with EDS a
few years ago.